I took this picture a couple days ago when I was having a minor setback- and it occurred to me, this is what it feels like to live my life with this chronic condition.
I get glimpses of feeling like I am getting better. Just like the light gets blocked from the trees- it is only a glimmer of hope that quickly fades as the next setback starts.
Living withP.O.T.’S Syndrome Is the constant roller coaster- Constantly accessing myself- to determine what I can and cannot do. I am much better than at my worst. But I wonder if this is just my new normal? When will I know?
I am getting better at managing the disease. But it is really really hard to pace myself. I find that when I overestimate my abilities – I then suffer more the next few days- but these setbacks can last weeks. I never quite know what is too much. This creates a lot of anxiety.